There is no greater insight into caregiving than hearing from those who live it every day, whose hearts are shaped by both the joys and challenges of the journey. Recently, I reached out to my dear friend Angie, who is not only a caregiver but a warrior in every sense of the word, to share some of her story. She cares for her autistic son with such grace and strength. When Angie shared her story with me, it came from a place of deep love, resilience, and sacrifice.
Her words were filled with the raw, unfiltered truth that only a mother and caregiver could express—about the exhaustion that sometimes feels overwhelming, the fierce advocacy required to ensure her son gets the care and support he needs, and the moments of pure joy when her son achieves something, no matter how small. Through her eyes, we can see some of the challenges that come with caregiving, but more importantly, we feel the love that sustains her through it all.
Caregiving isn’t just about tasks or schedules; it’s about showing up every single day, pouring out love in ways that many may never fully understand. Angie’s story is a reminder that, while the road may be difficult, it is paved with moments of grace and beauty—moments where the heart finds strength it never knew it had.
She began by sharing how caregiving can be overwhelming, and how having a structured routine can bring peace and balance for both you and the person you’re caring for.
For example, her son is on the autism spectrum, and he thrives on a strict schedule. Knowing what comes next and checking tasks off his handwritten list gives him a sense of accomplishment and calm. Structure doesn’t just help the one receiving care—it can also give the caregivers moments of relief and control.
Angie goes on to express that one essential tip is to schedule time for yourself. Whether daily, weekly, or whenever you can, carve out a moment that is just for *you.* It’s not selfish; it’s necessary. For those in programs like APD Florida, CDC, or Medicaid Waiver, remember to use the respite care services available. These programs provide much-needed breaks, and even hospice offers people who will sit, read, or simply keep your loved one company—without medical intervention.
She talks about the importance of obtaining a Power of Attorney (if needed) and how it can be crucial, especially if you’re making decisions for someone who may not be able to. For parents caring for an adult son or daughter with disabilities, Guardianship is something to consider. Even though they’re your child, once they turn 18, legal authority over their decisions must be obtained through a court process. It may be costly, but the peace of mind it brings is invaluable.
One of the most important things Angie wants to remind other caregivers is that your energy is contagious and if you stay positive, your loved one will sense that and almost always respond in kind. This is why taking time for yourself matters so much—you can’t pour from an empty cup. And don’t feel guilty about it! Even a quiet moment or a short rest can renew your patience and strength.
She talked about the importance of involving your loved one in their own care as much as possible. Talk about upcoming appointments, write them down on a calendar, and keep them in the loop. Whether it’s a doctor’s visit or someone coming to the house, letting them know in advance helps reduce anxiety and makes them feel valued and included.
Lastly, Angie shared that while it’s not for everyone, consider the comfort of a pet. Animals can be incredibly soothing, especially for older people or those with sensory sensitivities. “My son has three dogs, and he calls himself their Daddy! Those dogs bring him a sense of peace when he’s feeling overstimulated.”
To all the caregivers out there, you are seen, you are valued, and you are loved. You are doing an incredible job, even on the days when it feels like the world is on your shoulders. And like Angie, you are not alone on this journey. There is strength in community, faith in the struggle, and so much beauty in the love you give.
Caregiving is a labor of love, but don’t forget to love yourself along the way too. I am thankful for my sweet friend Angie and her willingness to share and help others. Her dedication to her son is truly inspiring.
